I killed Mothman. He was blue and glittery.

Despite my husbands insistence that they are just “nighttime butterflies” I’m actually quite terrified of moths. I don’t particularly like butterflies either, they’re more of a “pretty at a distance” kind of crawly winged thing. But moths are like the vampire bunny creature of the night. Um, I should probably explain I’m also terrified of bunnies as I’m fairly certain they are secretly evil geniuses that will take over the world one day (think Pinky and the Brain but with more fluff). But that’s a whole other discussion.

The window in our car stopped working this week, it will roll down but not up. So I was driving and a moth got in the car and I’m trapped between panic that there is a moth and panic that I’ll crash the car if I don’t stop panicking about the moth. Then the moth may or may not have flown out the window and I was trying to convince myself it for sure flew out the window when suddenly I discovered something on my chest. Right in my cleavage! It was small and flat and when I picked it up it made a little crunch in the middle. Holly shit I killed the moth! 😱😭

This gave me all sorts of new panic. First because I touched a moth and will forever be infected by moth cooties, second because I killed the moth and maybe it will haunt me forever, third because it was still in the car with me, and fourth because the moth landed on me. It landed on me! It may as well have asked me to pet a bunny while it was at it!!! 😰 The second I heard the crunch I flung it across the car as my panic continued to grow exponentially, then realized I threw it at the passenger seat rather than out the window. So I pulled into a parking lot and turned the flashlight on on my phone to start looking for the moth.

After an exhaustive search I discovered the flat creature lying still just above the glove compartment. I shined the flashlight on it and discovered something interesting. The moth was blue and sparkly. It was the exact color of my nail polish. Apparently when the moth supposedly flew out the window I must have waved my hand in panic and the full nails worth of polish came off in one chunk and landed on my chest. I found it, crunched it, and flung it across the car. I’m still not convinced I won’t be haunted by the moth that may or may not have flown out the window, but at least I don’t have moth cooties on my cleavage, or a bunny in my car.

A welcome turn

Stepped into the same ER as we did 5 months ago. Got brought back just as quickly as before when the triage nurse saw his level of pain. Had the same ER doctor come in to the room. And as she stepped in she stopped. I’ve treated you before, haven’t I? He looked and said yes, that she was the one who found his cancer. She asked prognosis, current symptoms, and immediately put in orders for pain meds and a CT. I saw the same concern on her face as the last time when she ordered pain meds and a CT. Last time for his colon where she found multiple large masses, this time for his head where he was having the severe pain. It was all so similar, and so frightening.

I vividly remember 5 months ago, sitting in the chair next to hubby’s ER bed while they hook up his IV. Waiting in that chair while they take him for scans. And finally seeing the doctor return with results, closing the door I didn’t know the room had before closing the curtain usually used as a door and turning to us to explain what she found. That time led to a week at the hospital, a cancer diagnosis, explanation of stage 4, massive surgery, and a rollercoaster of pain and emotion that we still face.

Today I sat in that chair next to hubby’s ER bed while they hooked up his IV. Waited in that chair while the took him for scans. And then sat there anxiously staring at the door you wouldn’t know is there unless you’ve seen them use it. Desperately wishing it to remain open. I couldn’t handle going down this road again so soon. Even if I could handle it, I don’t know if he can. His mind is breaking.

Last time we sat through unspoken fear of colon cancer, this time the unspoken fear of it spreading to the brain. The doctor came back but the door remained open. Scans are clean, labs look great (considering). But she still admitted him. She wants another doctor to take a look, and beyond that just to give his body a rest. She is promising pain meds, anti nausea meds, and anti anxiety meds. And as the first batch went in his IV I slowly saw him sink into a gentle sleep. He is calm and resting, his pain managed, and when last I left his room he was keeping down what he has decided is the most delicious cranberry juice. The first thing he’s kept down in days.

It’s likely that the symptoms are just from the chemo, but it hit so hard and wasn’t letting up that we needed to get him in. What has me most concerned is the occasional moments of confusion or lapses in memory. It’s not normal for him, and started before these other symptoms. So they’re looking into it. I’m relieved that the brain scans are clean, and that he will be able to rest pain free even if just for tonight. This trip to the hospital had a much better turn out then last time. But I feel it will continue to loom over us every time we have these ups and downs. But right now I will sleep easy knowing he is safe. And tomorrow I will hopefully be able to take him home.

That is the worst idea you have had

When your therapist of 3 years, the women who has seen you through panic attacks, self harm, suicidal ideation, and lord knows what else says “that is the worst idea you have had.” You should probably listen 😬

So what was this terrible idea? I went off my meds. That may not seem like much, but remember all the lovely things mentioned in the first sentence? That was during a period of time I spent months arguing with her that I didn’t need medication. Followed by a month of trying to stabilize on my new medications, some of that time spent in a psych hospital. She helped me understand that I need meds, helped me find a good psychiatrist after I had had so many bad ones in the past, she helped keep me safe from myself while I worked to find the right blend, and she helped me understand that the meds bring me to a baseline where I can then work on my self care to become healthy and stable beyond that point.

Recently someone at the office started telling everyone that I don’t care about things. Suddenly rumors where flying around that I am heartless, that I don’t care about my work or my team. This started spreading out of control until someone started trying to tell others I should be fired so they can have someone that actually cares. As someone with Borderline Personality Disorder I’d never been told I don’t care. I’m told I care too much, I care when I shouldn’t, I am too emotional, that I need to shut it off. My whole world shifted as I began to hear these strange rumors and I panicked.

I knew the “issue” was that I was stable, and that I wear an emotional mask on top of that. I also knew that I wasn’t going to lower that mask, so the only way to show emotions through it was to stop being stable. So for the next two weeks I cut my antidepressant and mood stabilizer dosages in half. When I didn’t end up completely crazy after that I just stopped taking them altogether. I went against my better judgement. I went against the advice I give others to never adjust your meds without first speaking to your doctor. I went against the advice I give myself, to talk over decisions I know are probably wrong with my therapist before doing stupid things. I panicked, so I ignored everything but the rumors at the office and I screwed myself up worse.

So at last Monday’s appointment we discussed the issues I’m going through right now, and eventually got to the dreaded question:

“How are your meds working?”

“I’m not taking them.”

Pause… “When did you last see your Psychiatrist?”

“About 3 or 4 months ago?”

“So she doesn’t know you stopped taking them?”

“No.”

“How long have you been off your meds?”

“A week, I was on half dose for 2 weeks before that.”

Pause…. “Why?”

“They were making me stable so people thought I didn’t care. I needed stronger emotions at work or everyone would hate me!”

Longer pause (probably an effort to regain the peace she had found while meditating that morning before I had come in and ruined it) “That… that is the worst idea you have had.”

“They want to fire me!”

“You can’t just stop your meds.”

“I can’t be stable right now, they hate me at work!”

“Do you hear yourself?”

“Yes. But I don’t care. I need my job.”

“You are more important than just a job. You need to be stable for you and your husband and your kids. You need to be on your meds.”

So I’m back on my meds. I’m feeling better, more clear, more calm. But I still have moments of desperate desire to be off them. To let my crazy take control. I don’t know where this desire is coming from exactly, I don’t think it is just from work though that was certainly a catalyst. But something in me says I shouldn’t be stable. And this is a new fight for me, one I don’t know how to face.

When I was young and refused to acknowledge depression as a medical condition, or that I had anything more than seasonal depression, I would refuse meds or go off of them because I shouldn’t need them. I’ve fought that battle and moved beyond it. I’ve learned to ignore the occasional thoughts my brain throws at me trying to convince me of that lie. But this is a new lie. My mind says the meds are working, and they’re needed, but that I should stop anyway. I recognize the truth of my illness and my treatment, and something is telling me not to be treated. To let the symptoms take over. I don’t know what that is. I don’t know how to fight it. Have any of you fought that before? The idea that you can be stable but shouldn’t?

I need a break from me

I’m trapped in my own mind, stuck with my own company. I live the day picking apart my every action and shoving my own mistakes in my face. I torture myself, I cry, and then I hate myself for the tears. I go to bed at night and the mean part of me takes more control, feeding into my insecurities and stress in dreams. Tearing me apart worse than while awake because now that part of my brain controls all. I want to sleep, but I fear my dreams. I want to cry but fear my response to those tears. I want to scream and push back the part of me that is so filled with hatred, but I’m not strong enough. Or at least that part of me isn’t. I need a break from my own mind. I need to protect that little hurting girl in my mind from the monster currently tearing her apart. But I am that monster. I am both, and so hate both. I’ve been living on energy drinks this week for fear of sleep and for lack of sleep. I need a break. The house is quiet right now, the whole family asleep. My energy drink is wearing off and the TV is no longer blocking out the voices in my head. I need sleep, but it won’t give me the break my mind needs. I refuse to keep sleeping pills in the house specifically for this reason. Because I know I will take too many out of sheer desperation to not dream. So I sit and struggle. I’m safe, but I won’t have a break. I just need a break.

Counting down

As others have been counting down the days, hours, minutes until New Years, I have been counting down to my next therapy appointment. I’ve spent the last 2 years working my ass off to be stable, or at least to pretend I am with some amount of calm under the surface. A few months ago everything took a nose dive. Life said “fuck you!” and everything went nuts. It’s enough to add great deals of stress to the normally stable people, so you can only imagine what it’s doing to me. The biggest problem right now is that the issues are as time consuming as they are stressful. Which means that during this time of my needing the safe space of my therapists office more than anything, I haven’t been able to keep a single appointment. Every time I have scheduled one something has gone crazy that required my time and I had to reschedule.

I go on Tuesday. So far nothing has come up that can’t be handled without me or wait another day. I only need to make it until Tuesday. People have been asking me what my New Years resolution is. As I smile and make some non committal answer to move the conversation off of me, my brain screams in response “survive!” I want to survive. I want to survive this time both mentally and physically. I want to come out of this with a limited amount of new scars, no trips to the hospital, and nights with sleep. Even if that sleep is restless and filled with nightmares, at least it is a night safely asleep and not awake and lost in dangerous thoughts of “my family is better off without me” as I sit alone in the dark.

Two years ago I don’t know that I would have made it through. I have come a long way, and my ability to see that reminds me why I fight. Why I force myself to get treatment for my illness. Why I can keep getting up, even when I fall. So I will cling to this hope that snuck its way into my depression and follow it to my therapy appointment. Almost there. Just a couple more days. My countdown continues and with each day marked off brings more hope.

Happy New Year Y’All… cheers to us, and to therapy. May we all be blessed with many good and non-canceled therapy sessions this year.

Hiding away

I’ve hit one of my phases where I want to disconnect completely from the outside world. I’m virtually non- existent on social media. I can barely bring myself to blog. I wear my earbuds at work, or hide in a small conference room. I simply want to hide, to disappear temporarily. These phases frighten me because they can lead to worse depressions with time. So I continue to force myself out where I feel stable enough to do so. I’m focusing on self care and distraction. But that doesn’t mean I’m succeeding at these things. I’m falling much more than I care to admit into this pit of depression, fear, and self hatred. I will continue to fight through. I am mentally awake enough to know there is a better and a worse, and that the better is truly worth fighting for. I’ll make it through. I’m a stubborn bitch, so will continue to fight the monster of my mind.

I will not

I will not rage quit my job today.

I will not allow a single email to determine my career.

I will not allow this bitch to get to me, even after nearly three years of her hacking away at my mental state at work.

I will not rage quit my job today.

I will not stay up all night.

I will not be up all night afraid of the dreams that will haunt my sleep.

I will not allow my stress from the day to determine whether or not I will sleep that night.

I will not stay up all night.

I will not spend the day in tears.

I will not hide and cry all day over the devastation in this world.

I will not dwell on my personal experiences of loved once trapped in past shootings and replay the fear in my head while others face this new terror in their own lives.

I will not spend the day in tears.

I will not give up.

I will not forget that this day is temporary.

I will not allow the insanity of my current life and stress levels to destroy the future I am always fighting towards.

I will not give up.

By a robber in the woods

A very dear friend of mine attempted suicide this weekend. She survived and is safe in a psychiatric hospital right now. But I spoke with her today and she still seems overcome by the depression and the sorrow she faces. I looked briefly through photos of us over the past few months and can see, now with clarity, the smile on her face and the sorrow in her eyes.

I am in hermit mode while I safely heal my own broken heart as she exhaustedly fights for hers. I await to see the success of her fight because I cannot bear it to think she may lose. She is strong, though she doesn't see it. She is brave, though she sees only her fear. I will see the truth of her on her behalf while she navigates the dark woods of her depression.

I do not claim to be religious but have studied numerous scholars of numerous religions. One of the things that has always stuck with me was the idea by Martin Luther in the 16th Century that suicide did not mean that the soul was damned. That having your life taken by the despair the devil attacks you with is no different than being murdered by a robber in the woods. I believe that to be true.

My friend was attacked by a robber in the woods. She survived but continues to fight through these horrifying woods of her mind. I hope she receives the guidance she needs to make it out. Whether through a god, a therapist, a friend, or a family member. I want her to come safely out, back into the sunshine that will heal her.

Like a mime in a box

Most of the week I have felt trapped. Not like trapped at home, but like stuck in the outside world without escape. Coming home each night feels like freedom. Leaving in the morning is near terrifying. At work I feel the walls closing in and I begin to panic as I worry if I still have my escape route, if I can actually get out if I go into full panic mode. 

I was trying to explain this to my husband and the best I could describe is that I’m like a mime in a box. I’m trapped and the box is so close around me. You can’t see the box though, in fact the box doesn’t even exsist outside of my own mind. But you can see my fear and my stress. While I work so hard to hide my panic, some bits creep out and are visible, which makes the fear all the more real and intense. 

I hope to be the mime leaning on the table and eating grapes soon, but for now I will hide in the safety of my home as much as possible until the walls of the outside world stop closing in.

No Sleep

My brain tonight (and so many other nights)…

Did I leave a knife on the kitchen counter? What if the kids grab it, or the cat knocks it over? I think I put it away, but what if I didn’t?

I should go check that, and check the door lock again while I’m up. I know I already checked the lock a few times, but what if it’s a false memory? Maybe I didn’t actually check.

Kids talking in his sleep. Maybe his dreams are getting too much. I know he sounds fine, and he’s always fine when he talks in this sleep. But what if this is the first time he’s not? Maybe he’ll get trapped in a nightmare. Maybe I should sleep next to his bed just in case.

Maybe I should have both the kids sleep in our bed. What if someone breaks into their room?

What is that sound? Is that the neighbors or a burglar? Maybe it’s a kidnapper?

Are the kids craft paints put away? I know we put them away, but what if we missed one? What if the cat drinks it and dies while we’re asleep? I should go check that. And the knife I put away. And the door lock. 

But what if someone knocks on the door when I’m up checking on things? I can’t speak to someone in this mental state. But they’ll know I’m here, they will have heard me. They’ll never leave, I can’t hide or escape them. Maybe hubby will check the paint and knife and door lock?

But he might start to hate me if I wake him up. Why does he stay with me? I’m a terrible person! Why did he ever bother to marry me? Why did he settle? I can’t destroy his life. I won’t wake him up. He’s too sweet and would check everything. It’s not fair to him.

I should just go to bed. I have to sleep. If I don’t sleep well, then the kids will hate me. They probably already hate me. I’m a terrible mother. Only a terrible mother would have gone this long without getting up to check that the knife and paint were properly put away, and that the door was locked. I only checked these items 3 times before laying down. A good mother would check again.

I’m exhausted.