Too sick to be poisoned

Sorry for my lengthy silence. And I warn you there will probably be more gaps through the year. I haven’t forgotten, I haven’t gone away. But life is rather unkind, and I will need times to step away and live through the storms.

Today the storm feels quieter. Why? My husband was too sick for this round of chemo. This seems like it would be bad news, but as I’ve been monitoring his symptoms the last few months I have found that chemo is taking waaaaayyy too much out of him. When the symptoms were so bad he became suicidal I broke. He needed to discuss options with his doctors. The treatment was doing more harm than good. I went with him to his appointment this time and watched as he nonchalantly described the basics of his symptoms.

“Tired”

“Cold”

“In pain”

Dr took note. Anything else?

“Yes!” I yelled. “So tired we’re lucky if he can stay awake long enough to watch a movie with his children. So cold our house is heated to an extreme and he still can’t leave his numerous blankets. So much pain he can’t do simple tasks. He is stumbling. He is struggling to breath. He is loosing his eye sight. He becomes so discouraged that he begins to feel suicidal. He has NO QUALITY OF LIFE. This is not okay!”

The Dr looked at me in shock for a moment then pushed hubby for more details. Apparently unaware that he can shrug off such severe symptoms so easily when discussing them in these appointments. Turns out the symptoms have become severe enough that they did not feel it medically safe to give him chemo this week. His body needs a break. He did his other cancer treatment and they adjusted some meds. Moving forward they will be on speaker phone with me for all appointment since apparently hubby doesn’t speak up, and they don’t push for enough details.

I should be mad, stressed, scared. And I am. But today I am mostly happy that I get to see my husband again. The med adjustment and quick chemo break did the trick. He is him today. I have not seen him like this in months. Enough energy to play a board game. A slightly higher appetite. Greater mental focus. And more laughter than I’ve heard in ages. He was too sick for chemo and so for this short moment I have my husband back. I’ve missed him so much.

Please always be honest with your doctors. Describe the severity of your symptoms. You are not complaining, you are giving the necessary information. The treatment could have killed him faster than the cancer because he didn’t want to complain. I complained for him and now his body gets to heal for a couple weeks and regain some strength. No matter how short this time between rounds, for today I will dwell in the joy of having my husband again.

A welcome turn

Stepped into the same ER as we did 5 months ago. Got brought back just as quickly as before when the triage nurse saw his level of pain. Had the same ER doctor come in to the room. And as she stepped in she stopped. I’ve treated you before, haven’t I? He looked and said yes, that she was the one who found his cancer. She asked prognosis, current symptoms, and immediately put in orders for pain meds and a CT. I saw the same concern on her face as the last time when she ordered pain meds and a CT. Last time for his colon where she found multiple large masses, this time for his head where he was having the severe pain. It was all so similar, and so frightening.

I vividly remember 5 months ago, sitting in the chair next to hubby’s ER bed while they hook up his IV. Waiting in that chair while they take him for scans. And finally seeing the doctor return with results, closing the door I didn’t know the room had before closing the curtain usually used as a door and turning to us to explain what she found. That time led to a week at the hospital, a cancer diagnosis, explanation of stage 4, massive surgery, and a rollercoaster of pain and emotion that we still face.

Today I sat in that chair next to hubby’s ER bed while they hooked up his IV. Waited in that chair while the took him for scans. And then sat there anxiously staring at the door you wouldn’t know is there unless you’ve seen them use it. Desperately wishing it to remain open. I couldn’t handle going down this road again so soon. Even if I could handle it, I don’t know if he can. His mind is breaking.

Last time we sat through unspoken fear of colon cancer, this time the unspoken fear of it spreading to the brain. The doctor came back but the door remained open. Scans are clean, labs look great (considering). But she still admitted him. She wants another doctor to take a look, and beyond that just to give his body a rest. She is promising pain meds, anti nausea meds, and anti anxiety meds. And as the first batch went in his IV I slowly saw him sink into a gentle sleep. He is calm and resting, his pain managed, and when last I left his room he was keeping down what he has decided is the most delicious cranberry juice. The first thing he’s kept down in days.

It’s likely that the symptoms are just from the chemo, but it hit so hard and wasn’t letting up that we needed to get him in. What has me most concerned is the occasional moments of confusion or lapses in memory. It’s not normal for him, and started before these other symptoms. So they’re looking into it. I’m relieved that the brain scans are clean, and that he will be able to rest pain free even if just for tonight. This trip to the hospital had a much better turn out then last time. But I feel it will continue to loom over us every time we have these ups and downs. But right now I will sleep easy knowing he is safe. And tomorrow I will hopefully be able to take him home.

Depression and Cancer

I never liked to hear that depression is like a cancer of the mind. I am a mental health advocate and a firm believer that mental illness is in fact an illness, not just moods. I never corrected someone for comparing depression to cancer as I know how hard it is to describe to those who haven’t had it. But I simply did not understand the link. Cancer is cancer, depression is depression, right? Well today I got it. I suddenly understood the link.

Hubby is fighting stage 4 cancer right now. He went to the doctor this morning who said “you don’t seem yourself today, are you feeling alright?” He said no, and tried to explain but couldn’t quite put it into words. They did see that he was dehydrated so got him hooked up to some fluids. They tried to talk and help while he was at the office. But eventually he needed to go home.

Worried about why the doctor kept him late I came home early from work and found him half asleep in bed. I asked how he felt. He said he didn’t feel well, but wasn’t sure why. He described his day. That the fluids didn’t really help him feel better but it’s good he got them. That he kind of just doesn’t want to move. I asked “is it kind of like the exhaustion and aches that come from the flu but without the actual flu?” Kind of, that sounds a little similar. “Does it overwhelm your body but dull your mind?” Yeah. And I just want to sleep. I don’t want to keep getting up and facing these things. I just want to lay here. I don’t feel good. “Honey, that’s depression.”

As the husband of someone with Borderline he has heard me say so many times “I physically feel my emotions.” But I don’t think that really registered until today, when I put a name to his ache. I explained that it becomes overwhelming and takes over. That he needs to start going to therapy and get back on an antidepressant. He wasn’t quite convinced, though I could tell he was listening. So I went on.

Depression starts in the brain, your mind feels it and starts spreading it. What started as some chemicals in one part of your body is spreading to other parts and making them sick. If not treated it will not just go away. It will spread through you and overwhelm your body just as your tumors are. And that’s when it hit me. Depression is like cancer.

Depression starts in one place. It begins mild but is often ignored which allows it to grow. Untreated it will continue to grow and spread until it overwhelms your body and drastically decreases your quality of life. My husband had mild symptoms of cancer that were ignored. Untreated the cancer cells continued to grow and spread until it was discovered that he had tumors covering his colon, liver, and lungs. The cancer overwhelmed his body and drastically decreased his quality of life. But cancer kills, depression doesn’t, right? Wrong. If he doesn’t get treatment and this depression continues to grow it is possible it can take his life before the cancer has a chance to. And that scares me more than anything.

I get it now. I get the comparison. I likely still won’t use this comparison, but not because I don’t get it. As someone who has faced severe depression and not understood the comparison, I can only imagine how hard it would be for someone who has never faced depression to comprehend the link here. So I’ll stick with other variations to try to explain what depression is, and what it does. But today I gained new insight, and better understood others in the way they describe things. And for that I am glad. I’m happy to better understand them and the intelligence and logic behind their explanation. And I’m glad to have enough insight to help hubby get the treatment he needs for mind and body.

I’m back… kind of

Sorry for my sudden disappearance. Life went a little crazy all of a sudden. And by “a little crazy” I mean we moved, I started a new job, and my husband was diagnosed with cancer all within the span of a week. I’ve spent the last few weeks trying to focus and keep things moving. So I plan to get back to posting on a semi regular basis, but things will be a bit slow.

I need a break from me

I’m trapped in my own mind, stuck with my own company. I live the day picking apart my every action and shoving my own mistakes in my face. I torture myself, I cry, and then I hate myself for the tears. I go to bed at night and the mean part of me takes more control, feeding into my insecurities and stress in dreams. Tearing me apart worse than while awake because now that part of my brain controls all. I want to sleep, but I fear my dreams. I want to cry but fear my response to those tears. I want to scream and push back the part of me that is so filled with hatred, but I’m not strong enough. Or at least that part of me isn’t. I need a break from my own mind. I need to protect that little hurting girl in my mind from the monster currently tearing her apart. But I am that monster. I am both, and so hate both. I’ve been living on energy drinks this week for fear of sleep and for lack of sleep. I need a break. The house is quiet right now, the whole family asleep. My energy drink is wearing off and the TV is no longer blocking out the voices in my head. I need sleep, but it won’t give me the break my mind needs. I refuse to keep sleeping pills in the house specifically for this reason. Because I know I will take too many out of sheer desperation to not dream. So I sit and struggle. I’m safe, but I won’t have a break. I just need a break.

Clingy but Hidey

I’m a bit on the agoraphobic side recently. Hiding in my room, or nearly completely under a blanket on our comfy living room chair while playing video games. I would much rather fight monsters in Hyrule than go to the grocery store for the bottle of wine I desperately want. The problem, however, is that my kids need me in the outside world. I needed to be at 3 Cub Scout events recently, only one of which I called in sick to. But it was difficult to get myself to these. So I found the most comfortable parent for me to be around and clung to her. Not physically, that would be weird… I’m married. But mentally I drew from her energy, I existed in her bubble of calm, I let her overshadow me so as not to draw attention to myself. My hope is to get out of this clingy and desperate to hide phase soon. I need to get back to real life. But for now I will keep a worry stone in my pocket, an anti-anxiety pill in my purse, and a friend to cling to.

I will not

I will not rage quit my job today.

I will not allow a single email to determine my career.

I will not allow this bitch to get to me, even after nearly three years of her hacking away at my mental state at work.

I will not rage quit my job today.

I will not stay up all night.

I will not be up all night afraid of the dreams that will haunt my sleep.

I will not allow my stress from the day to determine whether or not I will sleep that night.

I will not stay up all night.

I will not spend the day in tears.

I will not hide and cry all day over the devastation in this world.

I will not dwell on my personal experiences of loved once trapped in past shootings and replay the fear in my head while others face this new terror in their own lives.

I will not spend the day in tears.

I will not give up.

I will not forget that this day is temporary.

I will not allow the insanity of my current life and stress levels to destroy the future I am always fighting towards.

I will not give up.

He’s still processing

I could see that my son was stressed, but unsure why exactly. He's 6 years old so doesn't know the words for what is happening in his mind. We talked and I gave him time to process the words while I listened. And I gave him some new words that might help explain his feelings, and make him feel less alone in his thoughts.

He started out by saying he wishes this was a dream.
"Why do you wish it were a dream?"
"I think maybe it should be a nightmare."
"What makes it a nightmare?"
"Um, because I want to wake up from it."
"Why do you want to wake up from this?"
Long pause….
"I just do."
"If you woke up, what would be different?"
"Well, I wouldn't have to eat all the healthy food" pause…
"Anything else?"
"Yeah, my room would be clean."
"Well, you can make that happen."
"But there's SO MUCH. All the toys all around, it makes me like I'm dizzy."
"Ok. Well we can find ways to make that easier."
Long pause….
"Is there anything else that would be different?"
"Well…"
Another pause…
"You can tell me sweetie."
"Well…. my fish would be back."

And that's when it clicked. He's been more irritable since his fish died. I can't believe I didn't connect the two before. So we snuggled for a bit, he began to cry. I just hugged him. I can see he's still processing the loss of his fish and it breaks my heart. We talked a bit more. I told him that maybe he was stressed, and he asked what that means. I described it as when things make us upset in a way that our feelings make us feel dizzy. But not like spinning around in circles dizzy, just an emotions dizzy.

I could see his understanding. I knew that was what he had been trying to put into words. I explained that when our stress feels really big, it makes us feel overwhelmed. I think he understood.

Today my son learned that his emotions have names, and he is not alone in them. Today I was reminded that he does have strong emotions, and I need to help him learn to process them. I never learned that as a child. I have the emotional (and physical) scars to prove it. I will do all that I can to help my kids learn to process their emotions.

If we were having coffee…


If we were having coffee we would be sitting in the cafe area of the library enjoying quiet mochas. As I get out of my recent funk I am striving to get out more, but still easily overwhelmed by the outside world. So the quiet and calm of the library is a safe place to relax and explore with you.

If we were having coffee I would tell you that I am finally getting around to reading Hitchhikers Guide to the Galaxy which I’ve meant to read for years. I’m only one chapter in but am highly enjoying it so far. What books are you reading (or planning to read) right now?

If we were having coffee I’d explain that I’m not one for New Years resolutions as my brain is so chaotic I prefer more short term resolutions based on current needs (with the hope of making long term healthy habits of course). However, I did do the Goodreads challenge for the year, and set it for reading 20 books in 2017. I love to read and would make it higher, but work is keeping me very busy so didn’t want to go too high.

If we were having coffee we’d rest here in the most calm area of the outside world and remember that this does exsist. There are safe places to go even when we are scared. And I am so thankful to you for joining me.

My overwhelmed brain

A thousand thoughts a second, too much noise, too much movement. I’m having one of those days where my BPD puts my brain on overdrive and I can feel everything. The Disney movie my children are watching is itchy on the sides of my face, the political news my husband is listening to crawls through my fingers, the lawnmower across the street makes me shaky, the random stream of light coming through the blinds tightens my chest. I feel everything. I want to sleep but my brain won’t stop, I want to distract my brain but everything makes it worse. I should take a sleeping pill but I have so much to do today. All I want is a short nap, is that so much to ask? A moments peace from this highly overwhelming brain day? But the worst is that when I do take a nap it will all follow me. All the stresses will appear in the vivid dreams I consistently have. Damned if I do, damned if I don’t.
Update: after 2 hours of enjoying a nice morning, followed by over 4 hours of hiding on my bed out of terror of… um… I don’t know, life(?), I’ve made it back to my baseline of sitting on the couch only half as anxious, where I am now reading. I can now fake exsistance again. Welcome to a day in the life of a borderline, as this has been a very small glimpse of my daily exsistance.